Many of you may have noticed the ebb and flow of the community-based HIV movement, influenced by medical and scientific breakthroughs, funder priorities, community activism and larger political, social and economic forces. Throughout my 20-plus years in HIV community-based work and volunteering, I have tried to ground myself in a few bedrocks as a way of anchoring my work. The essential connection between health and human rights. The need for policies, programs and services grounded in evidence and lived experience. Recognition of the central role played by the social determinants of health. And a commitment to social justice and taking seriously the voices of those most affected. That’s why I signed on to The Canadian Consensus Statement on the health and prevention benefits of HIV antiretroviral medications and HIV testing. The Consensus Statement uses these same foundations to ground a comprehensive, community-driven, holistic response to the HIV epidemic that combines HIV treatment and prevention, and health and human rights.
By Sarah Flicker and the Native Youth Sexual Health Network
Taking Action II is a community-based action research project about building and supporting Indigenous youth leadership in the HIV/AIDS movement. We are a group of Indigenous youth leaders, Indigenous community-based organizations and university-based researchers. We wanted to create awareness around HIV, sexual health, and decolonization in First Nations, Métis, and Inuit communities across Turtle Island (also known as Canada).
In Taking Action I, we worked with over 100 youth in six Indigenous communities across Canada to make art about the links between HIV and colonization. We did this as a way of broadening the conversations about HIV – to move away from the individual shame-and-blame discourse. We wanted to help communities understand and respond back to all the structural factors that have conspired to make them vulnerable to HIV: racism, poverty, land theft, residential schools, loss of language/culture, epidemics of addiction, the Sixties Scoop (the practice of taking Indigenous children and placing them in foster homes beginning in the 1960s) and ongoing child welfare involvement, incarceration, etc. Youth created a lot of amazing art that took up these themes. They loved our workshops and asked for more opportunities to get together with youth from other communities.
A global study released last year revealed alarming figures concerning women living with HIV and violence. Among 945 women living with HIV from 94 countries who participated in the study, 89 per cent reported having experienced or feared violence before, since and/or because of their HIV diagnosis. Violence they experienced was reported to be higher after HIV diagnosis from their intimate partner and others in their social network. The troubling nexus between HIV and gender-based violence spurred the Canadian HIV/AIDS Legal Network, HIV & AIDS Legal Clinic Ontario and METRAC to produce a legal information guide for women living with HIV who are facing — or at risk of — “intimate partner violence” — that is, physical, sexual or psychological harm from a current or former partner or spouse.
In addition to being an exceedingly common experience among women living with HIV, intimate partner violence and HIV are both stigmatized, isolating people who are affected. Intimate partner violence also increases women’s vulnerability to HIV. Women who have violent partners are more likely to have forced sex, are less likely to negotiate condom use, and are more likely to be abused when they insist on condom use— which poses greater risks of HIV transmission.
After a long battle, the SABSA solidarity co-operative clinic – an acronym which translates roughly to service at a low-threshold of accessibility – succeeded in negotiating a service agreement with the Québec Ministry of Health on July 20th, to continue to offer its services to members of the Saint-Roch and Saint-Sauveur communities in Québec City.
From its beginning, CATIE has shared information with people living with HIV so that they can take better care of their health. In Fall 2015, we undertook a national online survey to better understand the information needs of people living with HIV today. The survey results may confirm what you already know about your clients’ information needs. Or perhaps they contain a surprise or two. Whatever the case, the results help guide all of us in how we can best serve our clients.
The CATIE Blog hosts the views and opinions of people and organizations working and volunteering in Canada’s response to HIV and hepatitis C.